The Menzies Foundation hosted a workshop on 16 August 2013 to discuss ways that publicly-funded data can be made more available for public-benefit research. This workshop was attended by public figures and community representatives, senior public servants, members of parliament, researchers and media.
Themes of the workshop
Publicly-funded data, held in trust by government agencies, should be made more readily available for public-benefit research
- Public benefit research will improve the knowledge-base, as well as the effectiveness, productivity and accountability of health and other agencies of government, without harm to privacy.
- With public support, this will require
– A modest investment of new resources
– An enabling response from government agencies
– A streamlining of approval processes
- Government is already responding (eg APS Big Data Strategy)
- Today's workshop will review evidence of public support for data use, and explain how health can benefit from the modest changes summarised in background documents and in later presentations.
Some background to the issues discussed can be found at: http://blogs.crikey.com.au/croakey/2013/07/28/are-governments-locking-up-information-that-could-be-used-to-improve-our-health/
W01 Mathews, J. Public support of data linkage for better health753.54 KB
W02 Smith, M. Data linkage: project approval and data access1.18 MB
W03 Jorm, L. Expanding opportunities for data linkage1.2 MB
W08 Xafis, V. Community attitudes to data linkage research41.82 KB
W09 Bennett, C. Data Linkage for Better Health: A Consumer Perspective401.08 KB
W10 Pearson, S. Pharmaceutical Benefits Scheme835.43 KB